The iM4U Programme on Spinal Muscular Atrophy (SMA) ‘A Journey of Hope – Now and the Future’ was held on 9 May 2017 from 8.30 a.m. to 12.30 p.m. at Perdana Hall, MITI Tower. The programme was co-organised by PUSPANITA Ministry of International Trade and Industry (MITI) and PUSPANITA Ministry of Human Resources (MOHR), in collaboration with the World Health Organization (WHO) and We CARE Journey. The programme was graced by YBhg. Datin Sri Khamarzan Ahmed Meah and officiated by Mr. Francisco Cardenas, Director of World Health Organization-Global Service Center. YBhg. Datuk Seri J. Jayasiri, Secretary General of MITI and YBhg. Dato’ Sri Adenan Ab. Rahman, Secretary General of MOHR also attended the programme. There were approximately 420 attendees from NGOs, officers of MITI, MOHR and their agencies, patients of SMA and their families. The programme aimed to raise awareness, funding and encourage the current campaign of We CARE Journey and their efforts and also to provide practical continuous awareness and support to the community.
iM4U is a yearly event organised by PUSPANITA. The concept of iM4U is similar to a Corporate Social Responsibility Programme, a voluntary work. This year, PUSPANITA MITI and PUSPANITA MOHR decided to support We CARE Journey that dedicates its time to provide awareness to public about Spinal Muscular Atrophy or SMA. In brief, SMA is a genetic disease affecting the part of the nervous system that controls voluntary muscle movement of which hinders the ability to walk, stand, eat, swallow and breathe. It is the number one genetic killer of infants and young children and currently treatment is available but expensive.